I just have to wonder if I am one of the only people with MS that has to fight with his or her family about eating??? They are always trying to push me to eat when I am not hungry... I have never really been a big eater. I am a strong believer, that IF I am hungry I WILL eat! Just leave me alone until I want to eat and don't try to guilt me into doing something I don't want to do. Every single day, my family tries to get me to eat meals or what ever. Continually asking me, "Are you hungry? Do you want me to get you something to eat? What do you want to eat?" or saying to me at some point "YOU have to eat now! No excuses, YOU are GOING to eat!" One problem, I am not hungry. If I am not hungry, I have problems eating food!!! It's like my body is resisting. I either get the hiccups or I aspirate (meaning food gets in my bronchial tubes or wind pipes) on what I am eating.
So, does anyone else have this problem of not being hungry when most "normal" people would be hungry?
Something else I wonder about is insomnia... Is this just me or do others suffer from it as well??? IF I sleep 3 or 4 hours a night I am doing really well... The only day (night) I rest really well is the night I take my Avonex shot... I sleep like 12 hours straight... I do NOT nap during the day. IF I do nap, it is only a 20 minute cat nap and that is very RARE... My daily regiment of medications make me groggy, yet I can not sleep... Neurontin, Baclofen, and Topamax all have warnings of drowsiness - which they do with a vengeance!!! BUT no rest for the wicked, must be... Not to mention the every day fatigue that is brought on by the MS alone... I feel so tired sometimes I could break down and cry, yet I don't... I keep my chin up and my mood light and smiley some how... By God's grace, I swear, it has to be...
So, does that happen to anyone else??? Or am I just the freak of nature that I think I am???
I read blogs and numerous studies where people with MS are affected so badly by the heat... YET, I CAN NOT handle COLD... I THRIVE in the HEAT of summer... I am talking HEAT - temperatures of 65 degrees and above... Even 110 degrees does not bother me a single bit!!! I am moving around like a teen-aged kid... Running to the lake to go swimming with my kids - okay not literally running, but you know what I mean... However, once the weather drops below 65 degrees, I am in TROUBLE - and I do mean quite literally!!! My muscles start getting stiff and it gets hard to move, even when I want to... My family doctor and neurologist can't figure this out because everyone else they know that has MS complains about the opposite...
So, am I the only "weirdo" out there like this??? That thrives in heat and does poorly in the cold???
These aren't sudden symptoms... I have had these all along... It's just something I have had to ask because my daughter and I just got into a spat over me not wanting to eat lunch yet... I didn't eat breakfast and it's like almost 3 and I don't want lunch... She is just being a worry wart... I have to laugh because it is one of my personality characteristics she kind of picked up along the way...
I hope someone will write back and let me know if it is only me or if they also go through symptoms much like what I am experiencing... I certainly would appreciate the feedback!!!
Hugs and smiles :)